EURORDIS - Rare Diseases Europe

European Voice of Rare Disease Patients

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 423 rare diseases patient organisations in over 43 countries Eurordis' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives. To this end, Eurordis undertakes activities on behalf of its members, notably in favour of: * Empowering rare disease patient groups * Advocating rare diseases as a public health issue * Raising public rare disease awareness, and also that of national and international institutions * Improving access to information, treatment, care, and support for people living with rare diseases * Encouraging good practices in relation to these * Promoting scientific and clinical rare disease research * Developing rare disease treatments and orphan drugs * Improving quality of life through patient support, social, welfare and educational services